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National Ataxia Foundation


National Ataxia Foundation
2600 Fernbrook Lane Suite 119

Minneapolis, MN 55447
Work (763) 553-0020
Thursday, February 9, 2012



The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research. NAF is a membership supported, nonprofit organization established in1957 to help persons with ataxia and their families. The Foundation's primary purpose is to support promising ataxia research and to provide vital programs and services for ataxia families.
http://www.ataxia.org

If you wish to donate directly to National Ataxia Foundation (Minnesota), then send your donation to the address below. Keep in mind, DareDealer.com is not responsible for inaccurate information posted online, so be sure to check with the charity first.

National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447


National Ataxia Foundation News


01/17/2012 03:24 PM
Research on Quebec’s Rare Brain Disease Could Help Unravel the Common Ones | 80beats
Artist’s rendering of a mitochondrian, the energy-producing cellular structure affected by ARSACS Scientists have pinpointed the cause of a rare, fatal neurodegenerative disorder called ARSACS, or autosomal recessive spastic ataxia of Charlevoix-Saguenay . The disease is due to defects in neuron’s mitochondria , the bit of biological machinery that generates energy for the cell—a structure known ...
01/17/2012 09:47 AM
Cell 'battery' found to play central role in neurodegenerative disease
( Queen Mary, University of London ) A devastating neurodegenerative disease that first appears in toddlers just as they are beginning to walk has been traced to defects in mitochondria, the 'batteries' or energy-producing power plants of cells.
01/14/2012 07:33 AM
Penta classmates try to fulfill wish
Each year, students in Lisa Bell's marketing class at Penta Career Center engage in a service project. This year, the project hit close to home.
01/18/2012 03:13 PM
Scientists create novel RNA repair technology
Scientists have identified a compound that can help repair a specific type of defect in RNA, a type of genetic material. The methods in the new study could accelerate the development of therapeutics to treat a variety of incurable diseases such as Huntington’s disease, Spinocerebellar ataxia, and Kennedy disease.
01/17/2012 11:17 AM
Defective cell 'battery' plays central role in neurodegenerative disease
( McGill University ) A devastating neurodegenerative disease that first appears in toddlers just as they are beginning to walk has been traced to defects in mitochondria, the 'batteries' or energy-producing power plants of cells.



YouTube Videos


02/02/2012 02:19 AM
Making the Best of It: Living with Sporadic Spinocerebellar Ataxia
This film is the story of my father's life after being diagnosed with sporadic spinocerebellar ataxia. Once a practicing family dentist, he has retired due to his inability to coordinate his muscle movements. There is no treatment for his disease and its cause is unknown. His case is one of many that show more neurological research is needed. This film has been entered into the 2012 Neuro Film Festival from the American Academy of Neurology Foundation at www.NeuroFilmFestival.com. Let's put our brains together to support brain research!
02/08/2012 04:00 PM
Gabrielle (Gabe) Ford Nationally Renowned Anti-Bullying Speaker Receives Toastmasters Award
Gabrielle Ford's Bio Gabrielle Ford never dreamed that a long-eared coonhound could change her life. But that's just what happened when she cared for her ailing pet Izzy and found the voice to help others in need as a nationally-known motivational speaker. Today Gabe's incredible story has drawn media attention from The Today Show, Cosmopolitan Magazine and Animal Planet, among others. Her 2009 autobiography Still Dancing shares even more of the inspirational details from her life as a way to encourage others that anything is possible. As a child, Gabrielle loved dance and dreamed of becoming a prima ballerina. That dream was shattered by a rare genetic neuromuscular disease, Friedreich's Ataxia, that would eventually place her in a wheelchair. Gabe not only struggled with the devastation of the illness, but also endured constant and cruel bullying from classmates. The constant torment took her on a path of depression and isolation. That all changed when Izzy, a long-eared coonhound pup, entered Gabe's life. Izzy became Gabe's best friend and constant companion. When this special friend mysteriously developed a condition mirroring Gabe's, Gabe re-entered the world to get Izzy the best treatment available. Speaking out for the voiceless Izzy gave her the courage to speak out for another voiceless group: the thousands of children bullied in American schools every day. Through countless personal trials, Gabe found her way back to the stage as an outspoken advocate against ...
09/13/2010 06:40 AM
PSA For International Ataxia Awareness Day_Movie1_Full.wmv
For International Ataxia Awareness Day. On September 25, 2010, the National Ataxia Foundation and other ataxia organizations throughout the world have declared that day as "International Ataxia Awareness Day" An estimated 150000 Americans know first hand the meaning of ataxia. That is how many people in the United States are affected by this disease. Ataxia is an often fatal degenerative neurological disorder which affects balance, coordination and speech. As the disease progresses, it can also impact the heart, sight, and hearing. Too often, ataxia strikes children and young adults. There is no treatment or cure for ataxia. To find out more about ataxia, visit the National Ataxia Foundation's website at WWW.Ataxia.org.
01/25/2012 07:06 PM
Part 1 National Anti-Bullying Speaker & Survivor Meets MI Governor Granhom
Part 1, part 2 continued on next video Gabrielle Ford (Gabe), National Anti-Bullying Speaker presented her work and memoir STILL DANCING to MI Governor Granholm yesterday. Gabe a victim of school bullying, everyday multiple times per day, for five years has been speaking in school across the country for eight and a half years. Seen on the TODAY SHOW, COSMOPOLITAN MAGAZINE AND MANY MORE. Gabe and her dog Izzy were diagnosed with very similar diseases which would took their ability away to walk. They landed on Animal Planet TV. Gabe and Izzy have traveled by wheelchair and Izzy in a wagon for years speaking out at schools, conferences, and clubs against bullying. STILL DANCING - Gabe's memoir is also a anti-bullying resource book for educators, parents, victims and those who bully as well as a dog lovers story. Visit www.gabeandizzy.com Gabe and MI Governor Graholm discuss Matt's Law and how we need to get it passed while through the MI Senate ASAP. Gabe was also guest of Senator Randy Richardville who introduced Gabe and her book to the MI Senate. Gabe hopes Senator Richardville will help pass Matt's Law immediately. BIO: Gabrielle Ford: America's Voice for the Bullied Gabrielle Ford never dreamed that a long-eared coonhound could change her life. But that's just what happened when she cared for her ailing pet Izzy and found the voice to help others in need as a nationally-known motivational speaker. Today Gabe's incredible story has drawn media attention from The Today ...
01/25/2012 07:04 PM
Gabrielle Ford...AMERICA'S VOICE FOR THE BULLIED (10th year speaking out)
BIO: Gabrielle Ford: America's Voice for the Bullied Gabrielle Ford never dreamed that a long-eared coonhound could change her life. But that's just what happened when she cared for her ailing pet Izzy and found the voice to help others in need as a nationally-known motivational speaker. Today Gabe's incredible story has drawn media attention from The Today Show, Cosmopolitan Magazine and Animal Planet, among others. Her 2009 autobiography Still Dancing shares even more of the inspirational details from her life as a way to encourage others that anything is possible. As a child, Gabrielle loved dance and dreamed of becoming a prima ballerina. That dream was shattered by a rare genetic neuromuscular disease, Friedreich's Ataxia, that would eventually place her in a wheelchair. Gabe not only struggled with the devastation of the illness, but also endured constant and cruel bullying from classmates. The constant torment took her on a path of depression and isolation. That all changed when Izzy, a long-eared coonhound pup, entered Gabe's life. Izzy became Gabe's best friend and constant companion. When this special friend mysteriously developed a condition mirroring Gabe's, Gabe re-entered the world to get Izzy the best treatment available. Speaking out for the voiceless Izzy gave her the courage to speak out for another voiceless group: the thousands of children bullied in American schools every day. Through countless personal trials, Gabe found her way back to the stage as ...



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